Wednesday, September 1, 2010

TLC Program on Woman with Caudal Regression

TLC recently featured an hour-long show on Joanne Fluke, who has caudal regression syndrome and participates in ballroom dancing. Here are some links.

A blogger at FWD (Females with Disabilities) responds to the TLC program and to other media coverage of Joanne.

One of the sensationalist-type stories like the ones FWD responds to above: story in the UK's Mirror

To see Joanne dancing firsthand, see this Groovability video.

Friday, August 13, 2010

Serial Casting Results

The serial casting went really well! His feet are a lot flatter, and his right foot, which was going in, is straighter. Also, he is not getting the red spots on his feet that he was getting from his braces because they fit him correctly again! It is amazing that we could do this in just 3 weeks. Here is a before and after photo. I never take them from the same angles, ughhg, but these two are really close for comparison.

Monday, August 2, 2010

Serial Casting: Weeks 1 and 2

Jordan is going through another few weeks of serial casting. His feet are just not flat anymore, and he is standing on his toes. Also, his left foot is really rotating in. Hopefully the serial casting will do something to put off more surgery and will keep him doing as well as he's doing.

Here are his feet before the first casts were put on. Notice how he is standing on his toes. He can't flatten them. It's hard to flatten them all the way if you push on them, too.

He is going to have these casts on for 2 weeks. This Wednesday will be 2 weeks, actually, so I'm eager to see what his feet look like so far. The PT thinks it will take just a few casts, and they will definitely be done before school starts. I am hoping we will have at least a week or 2 at the end of the summer for more swimming when he is out of the casts!

This shows how he just goes about doing everything he usually does while wearing the casts.

He actually got some wood chips in his casts that day at the playground. I hope I was able to get them all out and that when they cut off the casts, a whole lot of wood chips don't fall out!

I'll post more photos after he gets the casts changed this week.