My son is doing great and just turned 14 and started high school! I do often worry that I am missing something--some therapy he should have, some specialist he should see, some test he should have. It took me almost a year to convince the doctors to have him get a scan of the arteries in his legs. His old orthopedic surgeon mentioned to me that my son is missing some of the arteries in his legs, and no one ever further looked into it. I thought it was important to finally find out more about it because he was going to have surgery on his foot. Then he broke his femur, which is a whole other story, and the foot surgery was postponed.
So in the meantime, he has had the scan, but I haven't been able to find a vascular surgeon who will see him. His orthopedic surgeon did give a disc of his scan to HER vascular surgeon, who said she would see him, but I'm having a hard time making an appointment with her! I have called many times, and they never get back to me! It turns out that there are no pediatric vascular surgeons; it's just not a specialty at all. And it's hard to get a doctor who sees adults to see a child! Well, my son was 13 when I started calling them. Now he's 14, so hopefully he's getting closer to an age when they will accept him as a patient!
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